A while ago, I came across this great list of words that mean their opposites and lately, I’ve been thinking about another one: grounded. On the one hand, this can mean “well balanced and sensible,” (thanks, Google Dictionary). But it can also, in its adjectival form, mean “(of a child being punished) not allowed to participate in social or recreational activities.” As a result of the pandemic, I’ve been living both definitions simultaneously. On the one hand, my days consist of the only things that truly matter–home, family, work, sustenance. In our nearly monastic seclusion, we’ve dropped off the hamster wheel of needless consumption, and it’s been quite liberating. Life feels pared down to its essentials (yet another word COVID has revised the meaning of). But it has also felt incredibly restrictive. And I find myself wanting to rebel against those restrictions in precisely the same ways I did when I was grounded as a teenager–namely, sulking, seething, sneaking out, acting up. The irony, of course, is that my current sentence is largely self-imposed, and I don’t know when it will end. I just didn’t expect to feel cheated out of the crime spree that would warrant this prolonged state of house arrest, though I suppose if I looked carefully enough, I could find an infraction or two.
Escape Hatch
Today I am twenty-six and wandering the steep streets of Lisbon, alone. The sun is hot, the angle of its light here, extraordinary. I don’t know if I’ve ever flexed the muscles of my memory and imagination quite as often as I do now. Like everything else, they seem to have atrophied as I’ve grown older. But some faculties remain strong–are even, perhaps, getting stronger. The anguish, for example, with which I look on my daughter as she plays, alone, in the yard. We set out the sprinkler and she runs through it in a too-small-swimsuit from last summer. It’s been so long since she’s worn one that she forgets to take off her underwear first; a soggy hem peeks out. My fantasies are only ever of rescue anymore. When are you coming for me, I imagine asking. The reply for which I steel myself: I am not coming for you.
Scenes from something like quarantine
Increasingly, how I imagine life post-pandemic. #stillshelteringinplace
Scenes from quarantine, cont’d.

As in a dream or a Kafka story, I keep cutting my own bangs, yet they somehow remain the same length. I notice a strand (or two) that is suddenly as white as a cat’s whisker before wiping the trimmings from my face, the sink, the scissor blades. The task appears complete. But then, the very next day, my hair gets in my eyes again. Which either means it grows back overnight, or my forehead is shrinking?!?
Scenes from quarantine, cont’d.

Of a Saturday, I find myself ironing linens. This is not something I ever would’ve done P.P. (Pre-Pandemic). Generally speaking, I find the interminable housekeeping necessitated by life under quarantine obnoxious and exhausting. But pressing these napkins is somehow neither. Perhaps it’s because they belonged to my grandparents, whom I miss and think of often. My grandfather is still living and my grandmother is not, but I imagine she ironed these, lips pursed, with kids or cats underfoot and various worries on her mind, just as I am now. So the chore becomes a way of communing with her across the time and space that separate us, a kind of unexpected intimacy brought on by the stains and creases and caught threads of daily use and daily life, hers as well as mine. Were they entertaining when this one appeared, I wonder, and if so, who? What was the occasion? Was I in the world yet? Where did the napkins come from—a wedding gift, perhaps? A purchase? An heirloom?
I am also, in my ironing reverie, reminded of another time I did something like this, while working as an au pair in France. Then, at twenty-three, I found myself charged with not only napkins, but sheets and dress shirts and tablecloths, none of which I actually knew how to iron, having owned few such items, myself (I certainly never ironed my sheets). I would stand at that ironing board in vexed confusion, wondering what in the hell I was doing with my life (the refrain of my twenties, if there ever was one). And then I would botch the job, particularly if it was a dress shirt. This would invariably lead to a row with the family that employed me—mutterings from the mother, an outburst from the father—after which I would be sent to fetch fresh baguettes on a bicycle. I ordered these from the same pitiless woman in the same shop, every day, in tears. It was like living in a fucked up fairytale.
Which is a bit how the world feels now, some twenty years later, amid plague, unemployment, injustice and the abiding imperative—dare I say pleasure?—of laundry.
We’re not always wearing war paint
sometimes my body reminds me
that I am in it
the walls of your veins are thick
she says with annoyance
shouldn’t they be? I think with the same
the nurse is nonetheless kind (if also
impatient)
I recline in the chair, my head turned away
from the tourniquets and needles
and weep
which happens almost involuntarily now
whenever I am back where it all began
a year ago or so
as though in this position, passive and supine,
when things are being done to me
I finally have permission (or maybe it’s
privacy) to feel
everything I wouldn’t let myself
before
or
in-between
A new cartoon series, cont’d…

I drew this cartoon in the thick of my treatment on a particularly rough day. As I recall, I got a flat tire on the way home from radiation, my daughter was being a total pain in the neck, and the cat had vomited all over the rug when I finally made it back to the house. I remember thinking, incredulously, “Wait a minute… Other bad stuff can’t happen right now; I have cancer!” Turns out, it can–and does–happen.
Par example, last week I had planned a family beach trip to, in the words of my surgeon, “relax and enjoy the summer.” But the day before we were scheduled to leave, my husband stepped in a yellow jacket nest while doing yard-work and went into anaphylactic shock. He was rushed to the emergency room in an ambulance and spent the night in the hospital under close observation. It was awful. And, yet again, I was incredulous. Really, universe?!? Does our family not deserve some small reprieve after the world’s shittiest spring? But, as I should well know by now, it’s not really a question of “deserving.” These things are a matter of chance (hence the term, “misfortune”); as far as I can tell, human suffering is meted out unevenly and at random. And there are many people for whom it is much greater, or more dire. My husband is alright, we eventually made it to the beach, and some version of relaxation and enjoyment was had. It was not what I’d envisioned, initially, but we made do.
Sometimes, I taunt myself with the idea of someone out there in the world whose life is one of utter ease, without pain, conflict, illness, or injury, who just hums along without encountering unexpected obstacles, like a train on a greased track. I don’t actually know this person, most likely because she doesn’t exist. We also have a tendency to conceal our individual struggles, perhaps out of a sense of shame, which further promulgates that fantasy–the uninterrupted life of utter ease (or, if it’s more your thing, astounding productivity). Either way, I thought I’d share our recent mishap here to counteract that narrative–to remind myself that, even if it’s slow and squeaky, the train has not derailed. We keep chugging along, and I’m grateful for it .
When you haven’t used a fork in so long you’re like…

#oralcancer #radiationsideeffects
Blech, cont’d.

This morning, I told my husband that I feel like the penultimate episode of Game of Thrones (which he watches, but I don’t) took place in my mouth.
Blech

The past week has been ROUGH. My pain has escalated with each day since radiation ended. Mornings are the worst, but, once I visit what feels like our in-house pharmacy, things improve ever so slightly. That said, I miss not being on a slew of medications. I miss eating normal food. I miss my daughter, who’s spending the week with her grandparents because my doctors warned me that I’d be feeling terrible directly following treatment (and they were right). In short, I miss being a person who’s not dealing with cancer. But, if I have to be someone that is, I’m actually grateful it’s this person. The person writing and sketching and making an effort here and elsewhere. The person who got through it–at least, the first part–with grit, if not grace.
